Just a thought....
Don't compare your life to others'. You have no idea what their journey is all about.

Monday, 04 May 2015

Moving forward

At least, in one area of my life.

I know that there are many out there who will be thrilled (ok, that’s perhaps a rather strong word) to hear that I’ve made the decision to go for my radical mastectomy. It’s a huge thing for me, so I’ve planned it for the start of June, which gives me time to prepare physically, mentally, emotionally, and practically.

Physically, I need to work up fitness, particularly in my chest and arms. I’m also preparing myself for the possibility of lymphedema, the most frightening part of this whole deal and the main reason I’ve put surgery off for so long. Right now, I’m learning as much as I can about the prevention and management of that ghastly, incurable disease (yes, there are worse things than cancer - at least, in my book). Practically, I need to gather a front-buttoning, comfortable wardrobe. My shirts and blouses are all pullover. Not that I really need much encouragement to go shopping lately. Shopping, for me, is very much out of character. I’ve always been the Scrooge, thinking twice before spending a penny. This brings me to the mental and emotional part of all this.

This past month has been awful on so many levels. My first lone wedding anniversary was one of the toughest times I’ve had to go through. For many years, we didn’t celebrate birthdays or Christmases as a family. Our wedding anniversary was the Big Event of the year. Much was made of it. Tat and I did our level best to be out there and busy on that day, but it was still rough. The nights are the worst. I rarely sleep more than two hours at a stretch. My scans not long after Jurgis died showed a substantial shrinkage of the tumour. No surprise there. I was militant about my protocol, following it to the nth degree and he helped me, continually encouraging me in my weaker moments. After he died, I seemed to have lost all will. My protocol slid and became erratic. This has shown itself in my scan results. First there was no shrinkage. The last lot showed growth and the tumour isn’t looking ‘healthy’ anymore, so yes, I’m giving up, though not altogether…

The plan is this: Aside from my wardrobe issues, which are really minor - the joys of working in a charity shop are that clothes are easy and inexpensive to come by - there are a few more practical plans to make. I want to make pouches for the drains that I may have to wear for a couple of weeks. I’ve seen examples of these in US and Australian stores. I’ve not seen anything here, but am not worried, as I can make them. It will give me something to do during those long, sleepless nights anyway. After surgery, I’ll stay home for about two weeks before phasing in going back to work. I plan to go back to my anti-cancer protocol after the surgery, though I’ll probably cut back on the number of supplements. I do need to go back to a cleaner diet *sigh* That’s been the biggest factor in my health changes.


It's rather hard to find a non-gory image to illustrate the surgical incision and the drain bags I plan to make holders for. The holders are to prevent them pulling out of the surgical area when sleeping or going out.

I’m sorry I disappeared. I’m sorry I shut my friends out this month. I could barely deal with myself, never mind actually having to make meaningful conversation. At work, it’s easy. Simple customer service and possible chat about the weather. My evenings and nights have been a long marathon of watching TV series and online shopping (a rather troublesome side effect of my emotional state). Having said that, I do now have a couple of purchases that give me immense delight like the little fan I bought to help cope with the brutal hot flushes at night. It’s a bright, sunny yellow and just totally cool, if you’ll pardon the pun.

Onward and upward. It’s a long road, but I’m used to long roads by now, right?